Well, Ava's decanulation (removal of the trach) is on the calendar. The plan is Friday, September 14th so we will pray that everything continues to go well until then and that things go as best as they can on this day. She is actually getting over an infection that came with a 104 degree temperature, lots of coughing, extra secretions, increased suctioning, and minimal sleep (for more than just Ava!). Luckily things were improved slowly with ibuprofen or Tylenol every three hours, breathing treatments every four hours, and extra sleep. In general she was extra lethargic and wanted to be held nonstop but she continued to eat pretty well. However, today was a much better day. She had more energy, maintained a temp lower than 100 degrees, and didn't cough as much. Reese seems to have dodged it once again.
I've included pictures and one video below. Some of the pictures are from our extended family KC vacation since we knew we couldn't do a mountain vacation with Ava this year. Mountain altitude and thinner air aren't in Ava's best interest right now! We had a great time with Grammy, Aunt Amber, Uncle Chad, Cousin Brandon, Great Aunt Nancy, Great Uncle Steve, Cousin Megan, and cousins Jori and Josi. The KC vacation included trips to Deanna Rose, Black Bob Bay Water Park, SEA LIFE the new aquarium, Science City, and the neighborhood pool.
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| The laundry basket is always a go-to for entertainment. |
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| Neighborhood pool...it's fun to play outside the pool too! |
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| Neighborhood pool. |
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| Neighborhood pool. |
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| Science City |
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| Science City |
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| SEA LIFE |
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| Future plumber. |
What else are we supposed to do with Ava's extra equipment cord?
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