Overcoming Another Infection

Well, plans have once again changed but we aren't sure exactly what that means.  Ava caught another infection (upper respiratory infection) on Tuesday and has been on oxygen, had a fever (just on Tuesday), has done plenty of coughing with extra suctioning, and hasn't been eating.  By Thursday she was acting more herself with more energy but still required oxygen and was coughing a lot.  By today (Sunday) she has spent some waking hours off oxygen and has eaten a small amount.  The good thing is that she has still been a milk guzzler so with her whole milk and the instant carnation breakfast that we add to it, she still has been getting a good amount of calories through this all.  The downside is that she has most likely burned tons of calories with all her coughing and extra effort to breathe.  Gaining weight has been one of the doctor's concerns over the last couple months.  So as far as the plan that was originally to have a bronchoscopy and possible decanulation mid-October, that will all change.  We go to the doctor on Wednesday and will see if we will need to wait until spring to do this or if there is still the possibility of it happening this fall.  Whatever is best for Ava is what we will be most happy with as we pray for patience and peace.  We ask for prayers for Ava as she completely overcomes this bump in the road.  We'll keep you posted after Wednesday's appointment.