Exciting Game Plan

A game plan is what I'm calling it.  We've had game plans before that have needed to be revised so we are well-prepared if that needs to happen but the thought of being "trach-free" is an amazing one!  Yes, "trach-free"!  Ava had a doctor's appointment yesterday and has been off of the ventilator completely for close to two months now.  They like to wait at least roughly three months before removing a trach tube so at the end of August we will have another appointment to check-in and assuming all is still going well we will have another bronchoscopy at the beginning of September.  During this bronchoscopy procedure Ava will be put under and they will put a scope down her airway to look around and will remove any scar tissue that has developed since the last bronchoscopy.  If everything still looks good they will remove the trach tube during this same overnight stay.  The plan is to keep the feeding tube (G-tube) a while longer (from my understanding maybe a month or two?) to make sure she adjusts well and eats well after the procedure.  We have dreamed of the day with no trach cares/changes, not having to hold Ava's arm during her bath, and allowing her to get into a swimming pool deeper than her waist.  We are patient and willing to wait as long as Ava needs but we have to admit we are pretty excited! 

In the meantime we are enjoying every minute...

Riding our zebra at home.

Going to Deana Rose with mommy, daddy, uncle Sean, and aunt Heidi.

Silly sun hats with daddy!