New Date for Airing of NBC News Interview

Well, this post is mainly to let followers know that the airing of the interview our family had with NBC news about the Golf for Babies KC has changed in case you tried to watch it today or looked online.  We were told that it would now air next Wednesday, May 23rd.  It will still be during the 11:00am newscast. 

While I'm writing I'll let you know that we had eye dr. appointments with both girls yesterday and it was nothing but great news.  The doctor said that around this time in the girls' lives you can consider yourself out of the woods for anything eye related caused by prematurity if nothing has shown up at this point.  And nothing has so we can't be happier about that!!  Then we had a vent clinic appointment with Ava after that and it was basically just a check-in appointment.  We are continuing to wean off the vent during her sleeping hours at night which is the only time she is on the ventilator.  Every couple days were are turning the vent on 30 minutes later, so tonight she won't get vent support until 2:00am.  She has been doing great so we will continue to stick with that routine.  She is also spending most of her waking hours on the pasi muir valve which is the valve that goes on the end of her trach, only allowing air in but closing when she exhales.  This means she has to exhale through her mouth or nose and the air has to go through her vocal chords, making things a little noisier around our house!  It's great to hear her more and more.  She is tolerating the valve extremely well so we are praying that it continues!

Here are some pictures and a video from the last week.  We are trying to allow the girls to do a little more of the feeding themselves with the spoon.  We try to give them plenty of food prior to this because they probably wouldn't gain any weight with their performance...they get more on their faces than in their mouths!  On the video, make sure you have your volume on.  The laughing will make you laugh!