We went to the vent clinic today with Ava and once again it was a great appointment. They were pleased with Ava's status so lowered her vent settings again. For those keeping track, her pressure control was moved from 29 to 27 and her pressure support was moved from 26 to 24. The doctor also said that if she is doing well on these settings we can move each of these pressures down one more number in about 10 days since we don't go back for another 3 weeks. Zack and I are always so thankful for the progress God is making in Ava's development and are truly humbled when the medical staff tell us that it is not typical for a baby to be weaned on their vent settings at every appointment. Ava definitely isn't typical...she's made that clear from day one. Other updates from the appointment: weight was 17 lbs. 2 oz., we are requesting an OT consult from Infant/Toddler Services of Johnson County to start working on some feeding exercises in the home, and we are reducing Ava's predisolone (steroid) to 0.05 ml every other day. 0.05 ml is basically a couple drops so as close as we are to being off this, we are going the conservative route to get completely off. Very close though!!
Reese goes to the cardiologist tomorrow for a follow-up. She still has a tiny PDA that they aren't concerned about but want to keep an eye on in anticipation of it closing. She's still a little pistol. One of our neonatal nurse practitioners at Overland Park Regional predicted it. Even though Ava was the dramatic one in the NICU, Reese was going to be the "pistol" at home. We've got to admit, she's correct!
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| Looking so cute before sissy goes to her vent clinic appointment! |
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